tag:blogger.com,1999:blog-7678364805226918509.comments2023-10-15T05:07:59.759-07:00Baby Hearts Press BlogAnna Jaworskihttp://www.blogger.com/profile/13853647859743313342noreply@blogger.comBlogger61125tag:blogger.com,1999:blog-7678364805226918509.post-2907937681472332402014-07-14T06:46:41.024-07:002014-07-14T06:46:41.024-07:00I know! I think what's hard to believe is that...I know! I think what's hard to believe is that our boys are adults now! I know both of us feel very blessed in that area, Vicki. Thanks for the comment! :-)Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-69500971372096380802014-07-13T21:42:09.969-07:002014-07-13T21:42:09.969-07:00awesome! how far things have come since our kids ...awesome! how far things have come since our kids were born Anna!mom23boyshttps://www.blogger.com/profile/15292114273338120947noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-4669430746912196852014-06-28T14:32:59.186-07:002014-06-28T14:32:59.186-07:00I hope so, too, Vicki! We are very blessed in the ...I hope so, too, Vicki! We are very blessed in the United States to have some excellent centers that treat adults with congenital heart defects. Unfortunately, our countries are very big geographically and sometimes the treatment centers are few and far between. Let's hope this is an area that receives great growth over the years as the number of adults with CHDs continues to increase.Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-49396138799312093112014-06-28T14:30:46.196-07:002014-06-28T14:30:46.196-07:00Thank you for your comment, Vicki. I agree with yo...Thank you for your comment, Vicki. I agree with you. When others act with compassion to help people realize their dreams, I'm sure they will go on to do great things!Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-10622647960214777222014-06-27T14:34:09.220-07:002014-06-27T14:34:09.220-07:00we are very fortunate here in BC Canada to have St...we are very fortunate here in BC Canada to have St Pauls hospital and their Adult Congenital Cardiologists. my son will soon be seen at the PACH Clinic, the Pacific Adult Congenital Heart Clinic. I hope this becomes the standard across our country and yours.mom23boyshttps://www.blogger.com/profile/15292114273338120947noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-28038891904790537812014-06-27T14:29:24.995-07:002014-06-27T14:29:24.995-07:00just saw this on the news last night. not too long...just saw this on the news last night. not too long ago, a Seattle Seahawks draft pick was discovered to have have a CHD during his physical, and the Seahawks signed him up anyway, knowing that he could never play, but at least fulfilling this young mans dream. what wonderful things these organizations are doing for these young men. I am certain they will go on to do great things!mom23boyshttps://www.blogger.com/profile/15292114273338120947noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-77961486352571514652014-03-27T06:59:25.057-07:002014-03-27T06:59:25.057-07:00Great Social work.. we need to increase there leve...Great Social work.. we need to increase there level..!!<br /><br /><br /><br /><br /><a href="http://www.maxlapelpins.com/custom-pins.html" rel="nofollow"><strong><em>custom pins</em></strong></a> danishhttps://www.blogger.com/profile/15308883736643094248noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-53410429174001397162014-02-05T09:46:11.779-08:002014-02-05T09:46:11.779-08:00Can you help me make people aware of the petition ...Can you help me make people aware of the petition I created through Change.org. The petition will go to the CEO, of the American Heart Association, Nancy Brown; asking them to include BAV on their list of "Common Congenital Heart Defects" here is the link. : http://chn.ge/1lAUNvS If you have any other ideas on how I can spread the information please let me know. I do not have a large Facebook page to work with.Debby Gibsonnoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-32270941052340428022014-02-02T19:25:33.894-08:002014-02-02T19:25:33.894-08:00Debby, thank you for your comment. I don't und...Debby, thank you for your comment. I don't understand how the organization can publish an article in it's professional journal but then decide not to count those born with that heart defect in their numbers. What I've been told by one particular doctor is that if they counted those with BAV in the numbers of those born with CHDs, the number of children born with that birth defect (which really is a general label for over 40 different kinds of defects), the number would be so high it would be alarming. Well! Then MAYBE we would finally have the government sit up and take notice and MAYBE we would have more money spent on CHD research. I still don't understand it. I hope you do well and the doctors are able to help you to live a long and fruitful life.Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-79730553809675468032014-02-02T17:16:21.509-08:002014-02-02T17:16:21.509-08:00Hi, my name is Debby and I am 50 years old, born w...Hi, my name is Debby and I am 50 years old, born with CHD. I had my open heart surgeries in 1964 and 1967. I have a Dacron patch on my VSD, repaired PDA and repaired Coarctation of the Aorta.<br />Two years ago I had my first heart MRI and surprise - they found a defect not detected with earlier technology. I have a bicuspid aortic valve! Again at age 48 I found out I have a bicuspid aortic valve. And this bicuspid valve will impact my health. It is "meant to be" that I read your article. I was filling in a health assessment on the American Heart Association web-site and took not that a bicuspid aortic valve was not on the list of congenital defects. It is not a minor defect. The valve opens less so blood doesn't go through at the proper rate and also due to the slow blood volume through the valve those of us with this defect have an increased chance of plaque build up on he valve. I will be contacting the AHA. Thank you so much for bringing more attention to this matter. Debby Gibsonnoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-24092334205991454562014-01-21T18:46:19.515-08:002014-01-21T18:46:19.515-08:00HLHSDad, please come back and give us the URL for ...HLHSDad, please come back and give us the URL for your blog! Also, if you like this blog, I bet you'll really like http://www.babyheartspress.com which is where the book, "The Heart of a Father" is featured. I would love to read your blog. I feel that by co-editing "The Heart of a Father" I have a much great appreciation for my father and husband. I'm so happy to see more men communicating about dealing with a life with congenital heart defects. You might also enjoy the radio show. I hope you'll check us out!Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-23547116424505964552014-01-21T13:42:44.822-08:002014-01-21T13:42:44.822-08:00Just discovered this wonderful website and all the...Just discovered this wonderful website and all the awesome work you're doing! As an HLHS Dad I will definitely make use of the resources here: I love that there's a book by and for heart dads...very important, which is why I started my HLHS Dad blog. Thanks for all you do!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-57859002419991171782014-01-19T15:49:56.421-08:002014-01-19T15:49:56.421-08:00Thrilling, and not just hearts. What a blessing fo...Thrilling, and not just hearts. What a blessing for those in need♥Anonymoushttps://www.blogger.com/profile/00664055394112352598noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-90937250336033584572013-12-17T09:20:55.399-08:002013-12-17T09:20:55.399-08:00amazing!amazing!marynoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-22774919070837591352013-11-11T14:57:54.811-08:002013-11-11T14:57:54.811-08:00very nice!very nice!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-52488316962903891352013-11-04T04:34:24.005-08:002013-11-04T04:34:24.005-08:00I do indeed use Twitter! You can even use the Twit...I do indeed use Twitter! You can even use the Twitter widget on the side of my column. :-) I'm so glad you're enjoying my blog.Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-79821573811605165462013-11-03T20:24:37.852-08:002013-11-03T20:24:37.852-08:00Hi! Do you use Twitter? I'd like to follow you...Hi! Do you use Twitter? I'd like to follow you if that would <br />be okay. I'm definitely enjoying your blog and look forward to <br />new updates.<br /><br />Also visit my web blog: <a href="http://www.devilsadvocateresearch.com/members/alizamoln/activity/35001/" rel="nofollow">best weight loss supplement</a>Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-66045195518389068682013-10-22T22:09:46.196-07:002013-10-22T22:09:46.196-07:00Jill, thank you so much for your encouragement and...Jill, thank you so much for your encouragement and sweet words. I know I can always count on your family whether it's you and Paul writing for one of my books or whether it's Jeni allowing me to share her stories and photos of hope when I give speeches to the CHD community. I feel very blessed to have your family as part of my extended family. (((HUGS!))) <3 <3 <3 <br /><br />Love,<br />Anna<br />P.S. Did Jeni tell you that she is going to be my Guest for Episode #9 -- Teens with Congenital Heart Defects?Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-49011510579412841802013-10-22T15:36:26.182-07:002013-10-22T15:36:26.182-07:00Anna, You have always been a dear friend and mento...Anna, You have always been a dear friend and mentor for me and my family. You are such a sweet caring person that I admire greatly. Thank you for this newest endeavor you have taken on. I wish you all the Best! I look forward to hearing your interviews in November. <br />Take Care and God Bless You! <3 <br />Love, Jill SorensenKaren Jill Sorensennoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-72012001195379214452013-10-22T11:13:33.046-07:002013-10-22T11:13:33.046-07:00Heather, if you'd like to receive an eCard, wh...Heather, if you'd like to receive an eCard, which will give you a direct link to the show, let me know and I'll add you to my list. Just send your email address to me at Anna@babyheartspress.com. Thank you for your comment! :-) You made my day!Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-11329892988906779952013-10-22T08:50:46.189-07:002013-10-22T08:50:46.189-07:00Looking forward to listening to the show. Thanks,...Looking forward to listening to the show. Thanks, Anna, for all you do. <br /><br />Heatherhttp://www.crazyheartmama.comnoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-38737036716885624402013-10-06T16:47:03.568-07:002013-10-06T16:47:03.568-07:00Amazing stuff!! Cardiocel truly sounds like a prod...Amazing stuff!! Cardiocel truly sounds like a product that will eradicate the need for repeated heart surgery on young children as well as adults!!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-80173716050289508712013-09-10T07:19:33.426-07:002013-09-10T07:19:33.426-07:00Oh, Rita! I know! We also had a big gathering at C...Oh, Rita! I know! We also had a big gathering at Carol Self's house in Florida and we all went to Sea World together. We had such a great time! It really was fun when we finally got to meet in person. :-) We are a tight family indeed.Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-52006290871963100632013-09-09T23:29:29.256-07:002013-09-09T23:29:29.256-07:00So many memories of the "good old days" ...So many memories of the "good old days" of the beginning of the Internet and the start of the coming together of the CHD community. I remember the first time I met you and Uwe. To finally have faces, real people, instead of just screen names was such a blessing! How far this community has come.Ritahttp://www.angelfire.com/tx4/vicnoreply@blogger.comtag:blogger.com,1999:blog-7678364805226918509.post-24719432199586418592013-09-02T23:00:35.251-07:002013-09-02T23:00:35.251-07:00Dear Christie:
I love your comment and it echoes ...Dear Christie:<br /><br />I love your comment and it echoes precisely what other heart moms I've known with multiple children with CHDs have said. None of them would give up their precious heart children for anything. I'm so glad you haven't let fear rule your life and I'm also thankful you have your darling boys to hug and love. Thank you for sharing.Anna Jaworskihttps://www.blogger.com/profile/13853647859743313342noreply@blogger.com