Friday, April 19, 2013

Baby Hearts Press' First Guest Blogger -- Katie Cataldo!

I first have to say how excited I am to be a guest blogger this month for Baby Hearts Press!

Well, let me introduce myself. I am Katie Lynn Cataldo and 18 years ago I was born with a congenital heart disease called Hypoplastic Right Heart Syndrome.  I had my first heart surgery when I was 3 days old, which was the BT shunt.  I had my Open Heart Surgery when I was 4 years old, a Glenn.  My last heart procedure was 8 years ago.  I have been so blessed to be a healthy HRHS patient. 

I went 15 years not knowing any other CHD patients.  I did go through a moment in my life were I felt different and like no one knew how I felt as a kid.  I was always so unique because no one else had a big scar on their chest.  I would constantly get asked what happened to me and I have to say some of their conclusions were pretty funny.  Finally, at the age of 15, I decided to learn more about my heart condition.  In finding out all about my heart, I began to come in contact with other families and patients with congenital heart disease. It’s crazy how a little social media network like Twitter can get you connected to many other CHD patients.  I went from knowing only myself born with a heart defect, to finding out 1 out of 100 babies are born with a heart defect, and it’s the number one birth defect in America.

Now I am excited to be doing so much in the CHD community and working with Anna Jaworski for Baby Hearts Press.  Three years ago if you would have told me I would be talking to CHD families all over the world and helping organizations with awareness, I would have laughed and said that was not the kind of thing I could do.  But, here I am and looking forward to do more.

 • Katie is also a blogger for Heart Waves.  You can read more by Katie here: http://www.heartwaves.org/congenital-heart-defect-information/?Author=Katie%20Cataldo

1 comment:

Lisa said...

Katie, I am so glad you have found your place in the CHD world. You must have been terribly lonely and alone as a child. I look forward to reading more from you.

Lisa Schaffer
Mom to 6!
2 with complex CHD